eXarc
Trakanon Raider
- 1,605
- 502
Eh so, yeah...
I was hit by a drunk driver last December and started having problems about a month or two later. At first it just seemed and felt like whiplash so I continued to work, etc. and treated it as such.
Now I'll be having the first surgery of my life soon (date not set exactly yet) and at 24, almost 25 years old, it will be to remove a 2.2cm arachnoid cyst on one of the membranes between the brain and the skull. It's benign, thank God, so there's that. Unfortunately I have about 14 of 17 possible symptoms associated with it but it took me 10 months to get diagnosed and a proper MRI because of two reasons. One is the fact that I am prescribed to Wellbutrin and have been stable with that for years, so because of this I was diagnostically overshadowed by a neurologist four months ago who should have followed through with a complete scan order based solely on HALF of the symptoms I had at the time. She told me it was most likely psychosomatic and would go away on it's own. I waited three months for that appoinment. Wow. Anyway...
I go see a highly respected chiropractor and start a treatment plan getting adjustments with an activator and other run of the mill therapies. After almost two months, there was some obvious improvement in body functionality and posture however my neurological symptoms were skyrocketing. So they ended up ordering the MRI and it came back with that news a couple of days ago and so here I am.
It's been a pain in the ass, cause bros, I don't know if any of you have ever suffered from severe neck/back or neurological pain but it's an absolute bitch to properly explain, work through, diagnose and maintain daily life before you even have hard proof of something wrong. In the past year, with little to no treatment I have had vasovagal attacks several times, inward trembling and tremors combined with muscle weakness and soreness every single day, erratic body temperature and nerves that stand on edge several times a day no matter how relaxed I am, nausea/dizziness/balance loss so bad that I could not walk or leave bed for more than a couple of hours a day/migraines with aura and halo effect/loss of muscle control a couple times a week/speech problems/extremely weak and painful left shoulder and arm/wobbly and weak knees/tension under my breastplate/loss of facial expression and recognition with facial pain in related muscles including severity areas in jaw and eyebrow area/blurred vision and light sensitivity that made me cry one time it was so bad with all of the other symptoms/deviation of my entire frame because the nerves have altered the contour of their normal route to go around the cyst so it caused ulnar deviation I correct myself with wrist-wraps and insane spinal problems/tortacullis (sp?) in my neck among them and I don't even want to continue. Throughout all of this I still had to work at one point, then spent every moment afterwards still having to actually go through with daily life and prove something was wrong with me because my doctors weren't seeing it and family & friends are difficult to explain. I have a great support system, but you can only do so much. I am eternally grateful for everyone who has been here for me though. Some of the hardest months of my life...
They're not over, either. Still playing a waiting game while having been out of work and on bedrest for months, I have to call the neurosurgeon on Monday to explain that I've been symptomatic for almost a year and because they don't know that yet, hopefully that will push them to do the surgery faster because I'm losing a lot of my health in some of the hardest ways to heal. For those of you who don't know, a typical cyst like this is milimeters and mine is two fucking centimeters and then some. It's disrupting my glossopharyngeal and vagus nerve roots as well as spinal accessory to nerve roots 9-11 and possibly involving 7 and 8.
I've just been toughing it out, staying calm and doing as much as I can. I quit smoking (for real) and completely changed my diet, which was already pretty healthy in the first place. I'm anxious, feel completely overwhelmed by the lack of sense of urgency from those with the ability to assist me and I'm in a ridiculous state of either pain or debilitating neurological effects.
Does anyone have any advice on any of this? Has anyone ever had a surgery like this before or know anything about it? I'm a bit scared, but I've accepted it and have a lot of faith in these particular doctors but I'm so very uncomfortable all the time. I have never been given pain medication or anything this entire time, either...
Anway...that's that. I hope it goes well so I can get back to arguing about EverQuest full time.
I was hit by a drunk driver last December and started having problems about a month or two later. At first it just seemed and felt like whiplash so I continued to work, etc. and treated it as such.
Now I'll be having the first surgery of my life soon (date not set exactly yet) and at 24, almost 25 years old, it will be to remove a 2.2cm arachnoid cyst on one of the membranes between the brain and the skull. It's benign, thank God, so there's that. Unfortunately I have about 14 of 17 possible symptoms associated with it but it took me 10 months to get diagnosed and a proper MRI because of two reasons. One is the fact that I am prescribed to Wellbutrin and have been stable with that for years, so because of this I was diagnostically overshadowed by a neurologist four months ago who should have followed through with a complete scan order based solely on HALF of the symptoms I had at the time. She told me it was most likely psychosomatic and would go away on it's own. I waited three months for that appoinment. Wow. Anyway...
I go see a highly respected chiropractor and start a treatment plan getting adjustments with an activator and other run of the mill therapies. After almost two months, there was some obvious improvement in body functionality and posture however my neurological symptoms were skyrocketing. So they ended up ordering the MRI and it came back with that news a couple of days ago and so here I am.
It's been a pain in the ass, cause bros, I don't know if any of you have ever suffered from severe neck/back or neurological pain but it's an absolute bitch to properly explain, work through, diagnose and maintain daily life before you even have hard proof of something wrong. In the past year, with little to no treatment I have had vasovagal attacks several times, inward trembling and tremors combined with muscle weakness and soreness every single day, erratic body temperature and nerves that stand on edge several times a day no matter how relaxed I am, nausea/dizziness/balance loss so bad that I could not walk or leave bed for more than a couple of hours a day/migraines with aura and halo effect/loss of muscle control a couple times a week/speech problems/extremely weak and painful left shoulder and arm/wobbly and weak knees/tension under my breastplate/loss of facial expression and recognition with facial pain in related muscles including severity areas in jaw and eyebrow area/blurred vision and light sensitivity that made me cry one time it was so bad with all of the other symptoms/deviation of my entire frame because the nerves have altered the contour of their normal route to go around the cyst so it caused ulnar deviation I correct myself with wrist-wraps and insane spinal problems/tortacullis (sp?) in my neck among them and I don't even want to continue. Throughout all of this I still had to work at one point, then spent every moment afterwards still having to actually go through with daily life and prove something was wrong with me because my doctors weren't seeing it and family & friends are difficult to explain. I have a great support system, but you can only do so much. I am eternally grateful for everyone who has been here for me though. Some of the hardest months of my life...
They're not over, either. Still playing a waiting game while having been out of work and on bedrest for months, I have to call the neurosurgeon on Monday to explain that I've been symptomatic for almost a year and because they don't know that yet, hopefully that will push them to do the surgery faster because I'm losing a lot of my health in some of the hardest ways to heal. For those of you who don't know, a typical cyst like this is milimeters and mine is two fucking centimeters and then some. It's disrupting my glossopharyngeal and vagus nerve roots as well as spinal accessory to nerve roots 9-11 and possibly involving 7 and 8.
I've just been toughing it out, staying calm and doing as much as I can. I quit smoking (for real) and completely changed my diet, which was already pretty healthy in the first place. I'm anxious, feel completely overwhelmed by the lack of sense of urgency from those with the ability to assist me and I'm in a ridiculous state of either pain or debilitating neurological effects.
Does anyone have any advice on any of this? Has anyone ever had a surgery like this before or know anything about it? I'm a bit scared, but I've accepted it and have a lot of faith in these particular doctors but I'm so very uncomfortable all the time. I have never been given pain medication or anything this entire time, either...
Anway...that's that. I hope it goes well so I can get back to arguing about EverQuest full time.