moonarchia
The Scientific Shitlord
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Health Problems
- Thread starter Kuriin
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Noodleface
A Mod Real Quick
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Yeah I did but it being the weekend I expect no response. Still, was pleasantly surprised by the price.
Mostly worried about glimepiride causing problems with lows already
Noodleface
A Mod Real Quick
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Had my first laser appt today and holy fuck was that balls.
Sad to say I prefer the injection
Sad to say I prefer the injection
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Talking about helthcare having gone down I'm not sure what it was some time ago because I didn't need it. I do know after a number of trips to two of the Mayo clinics I don't think they are what they used to be. Or what people thought they were. Lot of political talk and bullshit and after meeting with a team of doctors multiple times they called and wanted me to return for another diagnosis.
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How you doing bro? I was thinking about you the other day. They still don't any idea wtf is wrong with you?
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MAD
Multiple Auto Immune Dieases. Yes that's my own term. I have symptoms of a number of them. As always have had type 1 diabetes since age 5. Controlled well, my A1C hovers around 5.0 to 5.2 give or take.
Thing is all the stuff has "test" that is not definitive. They have mentioned Lupus which explains a lot and a small percentage of people never test positive on the ANA test.
Same for MS. Even a lumbar puncture is not 100%. I had the minimum required for MS, but according to the Mayo after more than 5 years as a type 1 diabetic will show positive on that, be nice if "anyone" mentioned that before I paid for it and had it done.. I don't think it's MS because I have zero symptoms and never had spacity (twitch) and after 12 years you have to have a relapse to count as MS in X years which I have not had.
Doesn't matter, it all comes down to NSAID, corticosteroids and such. Doctors are dealthy afraid to give corticosteriods to a diabetic. When this started I did 5 days of 1,000 mg per day infusion of corticosteroids and my blood sugar never broke 300 and was told to keep taking it as long as it didn't stay above 300.
But how am I doing? Meh. The muscle weakness is a killer mostly in my upper body. I have a 10 pound barbell and I can do 5 curls and it takes me two days to recover. I can pick up more weight but I avoid it. Like I got a new computer and carried in from the car and sat on my desk and it was killer.
The inflamation is second. I can tell quickly when I have a flare up and can almost feel the blood flowing through me. I take ibuprofen or naproxen when it starts and if it plows through that I take prednisone.
Just in the last two weeks I have a new one with inflamation. Since this started my heart heart has gone up and I take heart medication that is for blood pressure (mine has always been on the low side) and it keeps it around normal. But two weeks ago for a second I thought I was having a heart attack. Very very tight across my chest, both arms pulled in and heart rate went up.
I popped another heart pill, ibuprofen, tylenol, and some potassium just in case. Used a heating pad and after about 20 minutes it settled down. Blood pressure never went up and the pain was massive down both arms muscles not like a heart attack and soon as it passed it was back to normal. It sucks though.
As of yet no doctor has been able to explain why when this first started I lost 45 pounds in a few weeks and I barely moved and stayed in bed the entire time. The weight loss didn't last long and I'm around 195 or so now which is my normal weight which considering I don't do alot isn't bad.
Dumb thing a doctor said, a rheumatologist said "you might have Lupus, but until you fail the ANA test it doesn't matter, your insurance won't pay for it". Umm maybe I should bring my bank and investment statements with me to get a diagnosis. For Lupus I think most take NSAID and corticosteroids which aren't exactly expensive. I did get a prescription for ibuprofen which seemed odd. I just ordered a big bottle from amazon.
Multiple Auto Immune Dieases. Yes that's my own term. I have symptoms of a number of them. As always have had type 1 diabetes since age 5. Controlled well, my A1C hovers around 5.0 to 5.2 give or take.
Thing is all the stuff has "test" that is not definitive. They have mentioned Lupus which explains a lot and a small percentage of people never test positive on the ANA test.
Same for MS. Even a lumbar puncture is not 100%. I had the minimum required for MS, but according to the Mayo after more than 5 years as a type 1 diabetic will show positive on that, be nice if "anyone" mentioned that before I paid for it and had it done.. I don't think it's MS because I have zero symptoms and never had spacity (twitch) and after 12 years you have to have a relapse to count as MS in X years which I have not had.
Doesn't matter, it all comes down to NSAID, corticosteroids and such. Doctors are dealthy afraid to give corticosteriods to a diabetic. When this started I did 5 days of 1,000 mg per day infusion of corticosteroids and my blood sugar never broke 300 and was told to keep taking it as long as it didn't stay above 300.
But how am I doing? Meh. The muscle weakness is a killer mostly in my upper body. I have a 10 pound barbell and I can do 5 curls and it takes me two days to recover. I can pick up more weight but I avoid it. Like I got a new computer and carried in from the car and sat on my desk and it was killer.
The inflamation is second. I can tell quickly when I have a flare up and can almost feel the blood flowing through me. I take ibuprofen or naproxen when it starts and if it plows through that I take prednisone.
Just in the last two weeks I have a new one with inflamation. Since this started my heart heart has gone up and I take heart medication that is for blood pressure (mine has always been on the low side) and it keeps it around normal. But two weeks ago for a second I thought I was having a heart attack. Very very tight across my chest, both arms pulled in and heart rate went up.
I popped another heart pill, ibuprofen, tylenol, and some potassium just in case. Used a heating pad and after about 20 minutes it settled down. Blood pressure never went up and the pain was massive down both arms muscles not like a heart attack and soon as it passed it was back to normal. It sucks though.
As of yet no doctor has been able to explain why when this first started I lost 45 pounds in a few weeks and I barely moved and stayed in bed the entire time. The weight loss didn't last long and I'm around 195 or so now which is my normal weight which considering I don't do alot isn't bad.
Dumb thing a doctor said, a rheumatologist said "you might have Lupus, but until you fail the ANA test it doesn't matter, your insurance won't pay for it". Umm maybe I should bring my bank and investment statements with me to get a diagnosis. For Lupus I think most take NSAID and corticosteroids which aren't exactly expensive. I did get a prescription for ibuprofen which seemed odd. I just ordered a big bottle from amazon.
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moonarchia
The Scientific Shitlord
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Sheriff Cad
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Control
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Koushirou
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So had a couple days free of bullshit, but now I've had another 7 fucking days of spotting shit including one day of just straight ass bleeding again. Keep calling the OBGYN and can't get an appointment, keep calling my PCP, but I can't get a human and they haven't returned any messages. This is fucking ridiculous and I don't know what the fuck I'm supposed to do at this point. At this point, I hope I can just get someone to just rip it all the fuck out. Fuck this shit.
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Sheriff Cad
scientia potentia est
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Sorry for silly questions. Are you due for your period? When was your last? I think you said you just haven't stopped bleeding/spotting?
Is the blood bright red? Brown/black? Pink? Any chance you could be pregnant?
Any pain along with the bleeding/spotting? Cramping? Any BV type symptoms?
You ever been tested for polyps/fibroids?
Koushirou
Log Wizard
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Fucking hate talking about this shit, but last one started Oct 31st, last day was Nov 10th (I went to the ER on the morning of the 9th because shit wasn't stopping, they said I was fine and just gave me the referral for the gynecologist). Still had spotting shit on the 11th and 12th, 13-15th was finally clear of anything, spotting started again on the 16th and had an actual day of bleeding on the 17th and then back to spotting shit from then until now. Tracker says I shouldn't be up for more until the 4th, but I imagine it doesn't know what the fuck to do, ATM. Also, my shit is stupid and generally goes 21ish days instead of 28, because I can't have anything nice in life. 0 chance of being pregnant (tested anyway at the ER). Never been tested for whatever polyps and fibroids are. Maybe they could test me if I could get a fucking appointment anywhere. No other pain or other dumb symptoms. I am wondering if maybe I have a phylactery somewhere and I'm sure my trust-level is now through the floor.
Izo
Tranny Chaser
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Not without risks. Have to wipe the flora in the GI with antibiotics first. Then multiple transplants. Vulnerable periods. But yeah, I wish the food we were able to buy didn't fuck up our biome.
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Gurgeh
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That’s the nuclear option. I think the work of Prof. Tim Spector offers a few alternatives to try from to restore the proper gut biome, before trying that.
I have UC . It took me 5 years of trials and error, but now it’s pretty much fixed. The diet that Spector didn’t work for me, but his work helped me understand what were the variables we knew of for gut bacteria. Then try various adjustments until I found what worked for me.
The issue is that it requires actual long term follow up from a doctor that can do experimental work, as there isn’t a single diet that fit everyone.
The problem is that most doctors are under pressure from insurance/government and can’t spend more than 15 mn a couple of times a year for each patient. Then probably a good half of the doctors aren’t interested or just don’t have a good understanding of the scientific method and lastly most patients just want a miracle pill for their illnesses.
My GP and Gastro were somewhat helpful in finding the proper diet to shut down a flare but I had to ask for their input, they won’t suggest it spontaneously.
When talking about it to my GP she just says : when I try to talk lifestyle changes , patients are like 'nah just give me the corticoids, I want to keep going with my shitty lifestyle'
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Sheriff Cad
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Gurgeh
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You're 40+, your body is giving you a hard time, and the first thing you do isn't cooking all your meals from wholefood isn't a rationnal behaviour. That's even the very base of modern medecine, "may your food be your first medecine" , that remain true to this day for most chronic issues...
I'd add getting organic food, or from the local farmer that you know isn't dirty probably help. When your body has inflammation or immune problem, you probably don't want to add too much random chemicals, even in relatively low amounts.
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