Elderly Parents and Looking Out for Them

BrutulTM

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My Mom is 74 and she's determined that she's not old but a lot of shit is getting hard to ignore. She still goes horseback riding fairly regularly and wants to be out on the 4 wheelers fixing fence and chasing cattle and whatnot. She can still do it pretty well but it surprises me how weak and incapable she is a lot of the time. She can't get gates open or closed that I can do without even exerting any force. She couldn't get the cap off of our portable fuel tank the other day and when I took it off for her I couldn't even pretend that it was tight. She's in good shape and health for her age but the physical decline is just undeniable. One of our neighbors is 75 and has been a horse guy all his life but just got a new horse a few weeks ago and it bucked him off and broke his pelvis. He could already barely walk because of past horse injuries but he's determined to get back in the saddle. I think he'd be way better off to accept reality and stop while he can still function at all, but on the other hand, people who quit living their lives tend to die pretty quickly so who knows?
 

Borzak

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After talkig to my parents looks like they are changing their minds on moving. They had wildly unrealistic ideas of what they could get for X amount of money. Not to mention moving at 80+ is not the same as when they were younger.

Like I said before they thought they could buy a fully modern/upgraded house on 25+ acres and be minutes from a metro area and pay the same or less than they paid for their house they live now that they bought 15 years ago in a very rural area.
 

moonarchia

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Took my dad out for breakfast this morning. We reminisced about about his dad. He said one of the regrets he had was not being able to spend more time with him towards the end. And he was glad to be back close enough to see me every week.

Thankfully he is still healthy, but his mom and youngest brother both died of cancer, so that could change in a hurry.
 
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Denamian

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I've got nobody else to vent to, so here you guys go.

Dad is 80, was told about 2 years ago that he had mild aortic stenosis, would probably need a TAVR in the future. He's a control freak that is deathly afraid of any form of anesthesia, so when things progress to the point that he's winded after walking 50', he still wants to put it off. A few months ago his VA cardiologist tells him that things had progressed and he's at moderate to severe aortic stenosis, shit can't be put off any longer.

I take him in for his pre op cardiac cath and they find 2 80% blockages and 1 90%. TAVR is off, he needs a CABG, triple bypass. 2 days later we've got an appt with a cardiothoracic surgeon who shows us the imaging from the cath and it's fucking obvious that shit is not good. He says dad's lucky he hasn't already. had a heart attack. Aortic valve replacement, triple bypass an while they're in there, a left atrial appendage closure to prevent his afib from throwing clots. Hunky dory.

Surgery was this past Friday. Other than his neck immobility delaying things, surgery goes as planned, no complications. He's sedated, intubated and sent to the ICU, where he is expected to be for the next 24 hours. We come to visit him the next morning. He's still fully sedated and intubated, dead to the world. Every time they dial down the sedation in prep to extubate him, his BP tanks and he starts fighting the ventilator. Resume full sedation and everything is cool, he stays that way for the entire weekend.

Monday comes and they order a head CT checking for a stroke. All clear so they check his chest. Bilateral pleural effusions, right lung collapsed. No fucking shit they can't get him off ventilation. He has a history of pleural effusions that I brought up in the pre op appts, why did they not check for this sooner?. Diuretics are resumed (he had been off his torsemide since 24HR pre op), meds are added to boost his BP and he is slowly weaned off sedation as tolerated.

Yesterday I grab my mom and we make the hour drive to the hospital. He's still intubated but now his eyes are open and very occasionally he's responsive. I ask him if he's in any pain and I got a slight grunt and shake of the head once. Occasionally I remind him to blink and he does so. Very disturbing overall and he sometimes looks like he's crying, but it's his eyes watering from blinking so infrequently.

Talk to the cardiothoracic PA about things and giver general ICU consent to do what they need to. Plan for the day is a bronchoscopy and chest tube. Things go well and they successfully extubate him around 9pm last night. I grabbed mom after work this morning to see him.

We get there and he's away from the ICU for another CT. When we can finally see him, I am met with the most disturbing thing I have ever experienced. He's awake and responsive, but it's like he has aged 20 years and developed advanced dementia overnight. Greatly delayed responses, erratic and extremely slurred speech, severe UE weakness. What responses I get from him are almost child like. The man who raised me is nowhere to be found.

I talk to the ICU attending and that was the reason for the CT, checking again for a stroke. Only the primary report was in, but it looks clear. Neuro consult has been requested and we'll hear from them later today. They're doing cultures on the fluid from the chest tube and what was suctioned out during the bronchoscopy, but have started antibiotics just in case.

The ICU Dr. says that most likely this is all because of the anesthesia and extended sedation. That recovery will just take more time than initially expected. I want to believe that, but part of my mind keeps wondering if this is how things are going to be from here on out.

Over the last few years I have joked that that I'm the parent nowadays. Now that it seems to be coming true, I just don't fucking know if I can handle it. Then again I could just be overreacting to things not going as expected.
 
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BrutulTM

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That's got to be tough seeing him like that. Getting old is a bitch.
 
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moonarchia

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I've got nobody else to vent to, so here you guys go.

Dad is 80, was told about 2 years ago that he had mild aortic stenosis, would probably need a TAVR in the future. He's a control freak that is deathly afraid of any form of anesthesia, so when things progress to the point that he's winded after walking 50', he still wants to put it off. A few months ago his VA cardiologist tells him that things had progressed and he's at moderate to severe aortic stenosis, shit can't be put off any longer.

I take him in for his pre op cardiac cath and they find 2 80% blockages and 1 90%. TAVR is off, he needs a CABG, triple bypass. 2 days later we've got an appt with a cardiothoracic surgeon who shows us the imaging from the cath and it's fucking obvious that shit is not good. He says dad's lucky he hasn't already. had a heart attack. Aortic valve replacement, triple bypass an while they're in there, a left atrial appendage closure to prevent his afib from throwing clots. Hunky dory.

Surgery was this past Friday. Other than his neck immobility delaying things, surgery goes as planned, no complications. He's sedated, intubated and sent to the ICU, where he is expected to be for the next 24 hours. We come to visit him the next morning. He's still fully sedated and intubated, dead to the world. Every time they dial down the sedation in prep to extubate him, his BP tanks and he starts fighting the ventilator. Resume full sedation and everything is cool, he stays that way for the entire weekend.

Monday comes and they order a head CT checking for a stroke. All clear so they check his chest. Bilateral pleural effusions, right lung collapsed. No fucking shit they can't get him off ventilation. He has a history of pleural effusions that I brought up in the pre op appts, why did they not check for this sooner?. Diuretics are resumed (he had been off his torsemide since 24HR pre op), meds are added to boost his BP and he is slowly weaned off sedation as tolerated.

Yesterday I grab my mom and we make the hour drive to the hospital. He's still intubated but now his eyes are open and very occasionally he's responsive. I ask him if he's in any pain and I got a slight grunt and shake of the head once. Occasionally I remind him to blink and he does so. Very disturbing overall and he sometimes looks like he's crying, but it's his eyes watering from blinking so infrequently.

Talk to the cardiothoracic PA about things and giver general ICU consent to do what they need to. Plan for the day is a bronchoscopy and chest tube. Things go well and they successfully extubate him around 9pm last night. I grabbed mom after work this morning to see him.

We get there and he's away from the ICU for another CT. When we can finally see him, I am met with the most disturbing thing I have ever experienced. He's awake and responsive, but it's like he has aged 20 years and developed advanced dementia overnight. Greatly delayed responses, erratic and extremely slurred speech, severe UE weakness. What responses I get from him are almost child like. The man who raised me is nowhere to be found.

I talk to the ICU attending and that was the reason for the CT, checking again for a stroke. Only the primary report was in, but it looks clear. Neuro consult has been requested and we'll hear from them later today. They're doing cultures on the fluid from the chest tube and what was suctioned out during the bronchoscopy, but have started antibiotics just in case.

The ICU Dr. says that most likely this is all because of the anesthesia and extended sedation. That recovery will just take more time than initially expected. I want to believe that, but part of my mind keeps wondering if this is how things are going to be from here on out.

Over the last few years I have joked that that I'm the parent nowadays. Now that it seems to be coming true, I just don't fucking know if I can handle it. Then again I could just be overreacting to things not going as expected.
Give it a few days before seriously freaking out. Between the drugs and abject exhaustion it can be a bit before you recover. Back in early Covidia days they forced me to hang out in the hospital for couple days when I came in for something minor. After all that bullshit I was zonked the fuck out for the better part of a week after I got out. I cna only imagine how draining that would be at 80.
 
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Denamian

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Give it a few days before seriously freaking out. Between the drugs and abject exhaustion it can be a bit before you recover. Back in early Covidia days they forced me to hang out in the hospital for couple days when I came in for something minor. After all that bullshit I was zonked the fuck out for the better part of a week after I got out. I cna only imagine how draining that would be at 80.
Yeah, that's what I keep telling myself. He had been drugged up for days, it's going to take time to recover. Things have been trending in the right direction, his current state is just disturbing as fuck. He was an alert, annoyingly chatty guy and now he's like a zombie with Alzheimer's.
 

Kharzette

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First time in here, but this kind of stuff is my life past few years.

Do any of you have any good recommendations for phones for elder folk? I used a nokia flip for a few years till the screen went haywire. It was honestly not great. The text stuff, address book etc, all went unused.

I'd teach her (my mum) how to use the contacts and 30 minutes later I'd hear her manually dialing someone.

I see phones for seniors on amazon but they are almost always 3g or some old tech that won't work on a US network. I'm on consumer cellular, and I think they need voice over LTE.

The last phone I bought for myself was an iphone 3G I used purely for developing games (I worked on Elysium Fields), so I know very little about them other than that I hate them.

I think Ideally it would be as dumb as possible, with big buttons and no confusing menu crap. Old people just don't get menus or the concept of navigation or selection. I've tested her a bit on touch screens and they are equally as baffling, so hoping to avoid touch screen controls.
 

moonarchia

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First time in here, but this kind of stuff is my life past few years.

Do any of you have any good recommendations for phones for elder folk? I used a nokia flip for a few years till the screen went haywire. It was honestly not great. The text stuff, address book etc, all went unused.

I'd teach her (my mum) how to use the contacts and 30 minutes later I'd hear her manually dialing someone.

I see phones for seniors on amazon but they are almost always 3g or some old tech that won't work on a US network. I'm on consumer cellular, and I think they need voice over LTE.

The last phone I bought for myself was an iphone 3G I used purely for developing games (I worked on Elysium Fields), so I know very little about them other than that I hate them.

I think Ideally it would be as dumb as possible, with big buttons and no confusing menu crap. Old people just don't get menus or the concept of navigation or selection. I've tested her a bit on touch screens and they are equally as baffling, so hoping to avoid touch screen controls.
Amazon search "cell phone for seniors" came back with some 4g phones, but nothing 5g. You can probably program an iphone or android to only come up with the dial pad and lock it there. Might need to google that though.
 
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moonarchia

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Yeah, that's what I keep telling myself. He had been drugged up for days, it's going to take time to recover. Things have been trending in the right direction, his current state is just disturbing as fuck. He was an alert, annoyingly chatty guy and now he's like a zombie with Alzheimer's.
How is your dad doing? He back up to speed?
 

Aldarion

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First time in here, but this kind of stuff is my life past few years.

Do any of you have any good recommendations for phones for elder folk? I used a nokia flip for a few years till the screen went haywire. It was honestly not great. The text stuff, address book etc, all went unused.

I'd teach her (my mum) how to use the contacts and 30 minutes later I'd hear her manually dialing someone.

I see phones for seniors on amazon but they are almost always 3g or some old tech that won't work on a US network. I'm on consumer cellular, and I think they need voice over LTE.

The last phone I bought for myself was an iphone 3G I used purely for developing games (I worked on Elysium Fields), so I know very little about them other than that I hate them.

I think Ideally it would be as dumb as possible, with big buttons and no confusing menu crap. Old people just don't get menus or the concept of navigation or selection. I've tested her a bit on touch screens and they are equally as baffling, so hoping to avoid touch screen controls.
I use a B300V (Blu Flex), no complaints at all. Solid, no frills, no bugs.

No idea if its 4G or 5G, and no idea why I would care. It works on modern networks.
 
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Kharzette

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Amazon search "cell phone for seniors" came back with some 4g phones, but nothing 5g. You can probably program an iphone or android to only come up with the dial pad and lock it there. Might need to google that though.
I've been giving that some thought. Like maybe getting a pine phone and just setting up exactly the way she wants.
 

Brahma

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Moved my mother in a few years ago. She was a spry active 70 or so. I see her slow decline less than 10 years later.

She slipped down a few stairs a couple time, along with a heavy fall in the shower. All three times she was fine thank goodness. I need to install another handrail on the stairs, and remodel her bath I'm thinking.

Now she forgets a LOT of things she says and does, and has become...argumentative on almost everything. My mother is extremely smart, and I think she is seeing her decline, and it's frustrating her?

It's taking all I have not to snap at her, or treat her like a child. A couple times my girlfriend clearly interrupted me about to say something I would probably regret. To my mothers defense...SHE saw the interruption, and realized she must have said something out of line for the GF to step in.

I have house keepers coming once a week to clean the house now, so my mother doesn't have to. It pissed her off. She pretty much yelled at me for seeing her as too old to clean up.

I refused to take her to get her drivers license, and luckily it expired, and she let it drop...but now I may as well buy stock in Uber.

It's a PITA I tell you...
 
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Denamian

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How is your dad doing? He back up to speed?
It has been a fucking nightmare. We are now post op day 55 and he's still in the ICU. He was transferred to the ICU at the VA hospital next door on 11/20, but last night was sent to the original hospital's surgical ICU (he was in cardiopulmonary/vascular ICU before) due to internal bleeding requiring transfusion. Looks like it was caused by the PEG tube becoming dislodged, but they're doing an endoscopy soon to be sure.

So post op he went through cardiogenic shock and fluid overload and treating that caused AKI requiring a few days of hemodialysis. He was intubated 2 more times, which led to a tracheotomy and PEG placement because he was hypercapnic on both a high flow cannula and bipap. All that time he was still somewhat delirious and sleep deprived.

Once they had him stabilized, he was potentially going to be discharged to an acute care rehab hours away from home, but luckily the VA hospital took him. He improved a little as their ICU is smaller and quieter, even managing to speak a few words earlier this week for the first time since the trach. Ironically it was “I can't breathe“ despite his O2 being at 100.

Unfortunately his mental state hasn't improved much. With all the other shit going on, we can't tell if it's from drugs, exhaustion, delirium or something else. The idea of what something else could end up being terrifies me.

Right now all I can really do is take care of Mom and drive her hospital whenever I can, since she's not capable of making that drive. He also seems to his most responsive when I'm there, so I try to be there almost every day.
 

moonarchia

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It has been a fucking nightmare. We are now post op day 55 and he's still in the ICU. He was transferred to the ICU at the VA hospital next door on 11/20, but last night was sent to the original hospital's surgical ICU (he was in cardiopulmonary/vascular ICU before) due to internal bleeding requiring transfusion. Looks like it was caused by the PEG tube becoming dislodged, but they're doing an endoscopy soon to be sure.

So post op he went through cardiogenic shock and fluid overload and treating that caused AKI requiring a few days of hemodialysis. He was intubated 2 more times, which led to a tracheotomy and PEG placement because he was hypercapnic on both a high flow cannula and bipap. All that time he was still somewhat delirious and sleep deprived.

Once they had him stabilized, he was potentially going to be discharged to an acute care rehab hours away from home, but luckily the VA hospital took him. He improved a little as their ICU is smaller and quieter, even managing to speak a few words earlier this week for the first time since the trach. Ironically it was “I can't breathe“ despite his O2 being at 100.

Unfortunately his mental state hasn't improved much. With all the other shit going on, we can't tell if it's from drugs, exhaustion, delirium or something else. The idea of what something else could end up being terrifies me.

Right now all I can really do is take care of Mom and drive her hospital whenever I can, since she's not capable of making that drive. He also seems to his most responsive when I'm there, so I try to be there almost every day.
Sorry to hear that. Hope he gets better.
 
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Kharzette

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I went with the pinephone. The shipping / tariff was brutal but the more I read about it the more I think I can just set it up exactly how she wants. It is a quadcore a53 / mali 400 and I've got a tater SBC running arch linux that is almost exactly the same except the tater has a mali 450 and 1 gig less ram.

I think I'll put arch on there and if she ever has problems or wants to change something I can just ssh into it and fix it.

I'll probably just have the main screen be the dialing number pad like an old digital phone, with maybe a tiny button somewhere to kick it into a more advanced mode.

The only real alternative I saw out there was another flip, which would probably break in the exact same way in a year or two. They all have a ribbon cable in the hinge that pulls loose and you can't get to it to fix it without breaking it.